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Showing posts with the label chronic illness

Spoonies

I pushed myself 2 weeks ago.  Not the kind of push to build more muscle, or the push to get through a hard circumstance.  It's not the kind of determined push to make your life better; you know, the kind where you need to just stop being lazy and do it.  My body was tired - not the normal tired when you're up too late.  This is all consuming in every way.  It's physical, it's mental, it's emotional, it's jarring.  The kind of tired where you can hardly think, you're body feels like you have the flu and getting up to use the restroom or eat is hard.  The kind of tired where your body tenses up for no reason and bumps into a constant mini anxiety attack for the entire day.  Where you look down at your hands and notice for the past several hours you've lied there on the couch with your hands in fists because for some reason or another that's the assumed anxious position for my hands.   Air hunger is on and off today - has been for day...

Lyme Diagnosis -- The pieces are finally coming together!

Lyme Diagnosis When I received the call a few weeks  ago   with  the positive results for Lyme disease I was giddy for the first 15 minutes.  I have been "sick" for so long and it was finally a "real"  answer    Growing up I was sick A LOT!  It got to the point where at times we'd just call the doctor and ask for an antibiotic.  I don't remember a time I had a lot of energy; tiring out way before my siblings or friends.  Below are some of the diagnosis I got over the years.  A lot of people will say they were misdiagnosed for years.  Yes I do have these health issues, but it all points back to Lyme.   It’s so frustrating because I look fine.  When I say I’m tired, many of the below symptoms are going on.  It’s not just needing a nap; it’s severe.  It is estimated I've had Lyme for at least 25 years. Symptoms/Diagnosis multiple throat infections as a child per year. fatigue a lot from chil...

When Mama is "sick" - has on-going health issues.

This is something my family knows all too well.  Over the past 2 years things have really been hard in some aspects.  In others, it's been better.  I've recently talked to 3 different women who are also at times bed ridden with children at home.  It's a very difficult road to walk.  While this may not help everyone since we're all different, I know it would be very helpful for me and some of my friends.  Read on if you know someone who has on-going health issues and you want to help them.  It can be very lonely and isolating. 1. Don't forget us.  When testing is being done or we're getting on a new regimen, people pray for us and we get calls and/or letters to see how we're doing.  Once the testing is done, we're forgotten about again (or that's how it seems).  Let us know you're still praying for us, pop on over for a short amount of time (because we usually can't do that long), and just sit with us and talk.  We miss getting...